Check all that apply.

Is there a history of AIP in your family?

0
Yes
No
Unsure

Who provides you with support in managing your disorder?

1
Friends & family members
AIP support group
A physician or other healthcare professional
Other people with AIP
American Porphyria Foundation (APF)

During an AIP attack, what symptom(s) do you experience the most often?

1
Abdominal pain
Nausea and/or vomiting
Muscle weakness/fatigue
Pain in extremities, chest, neck, back, or head
Mental or emotional symptoms
Other

What kinds of things do you do to stay positive?

1
Participate in a support group
Exercise
Yoga or meditation

You are about to leave the PANHEMATIN (hemin for injection) website and enter a website operated by an independent third party. The links to third-party websites contained on AIPorphyria.com are provided solely for your convenience. Lundbeck does not control the opinions, claims or comments contained on any third-party website linked to AIPorphyria.com, and your activities at those websites will be governed by the policies and practices of those third parties.

  1. Anderson KE, Bloomer JR, Bonkovsky HL, et al. Recommendations for the diagnosis and treatment of the acute porphyrias. Ann Intern Med. 2005;142:439-450.
  2. Crimlisk HL. The little imitator-porphyria: a neuropsychiatric disorder. J NeurolNeurosurg Psychiatry. 1997;62:319-328.
  3. Thadani H, Deacon A, Peters T. Diagnosis and management of porphyria. BMJ. 2000;320(7250);1647-1651.
  4. Porphyria. Genetics Home Reference. http://www.ghr.nlm.nih.gov/condition=porphyria. Accessed May 12, 2010.
  5. Porphyria, Acute Intermittent. eMedicine.Medscape.com. http://emedicine.medscape.com/article/205220-overview. Accessed May 12, 2010.
  6. Elder GH, Hift, RJ. Treatment of acute porphyria. Hosp Med. 2001;62(7):422-5.
  7. Sassa S. Diagnosis and therapy of acute intermittent porphyria. Blood Rev. 1996;10 (1): 53-9.
  8. Herrick, AL; Moore, MR; McColl, KL; Cook, A; Goldberg, A. Controlled Trial of Haem Arginate in Acute Hepatic Porphyria. Lancet. 1989 Jun 10; 1 (8650):1295-7.
  9. Panhematin [Package Insert]. Deerfield, IL: Lundbeck; 2010.
  10. Watson CJ, PierachCA,Bossenmaier I, Cardinal R. Adv Intern Med. 1978;23:265-286.
  11. Pierach CA, Bossenmaier I, Cardinal R, Weimer M,Watson CJ. KlinWochenschr. 1980;58:829-832.
  12. Lamon JM, Frykholm BC, Hess RA, TschudyDP.Medicine (Baltimore). 1979;58:252-269.
  13. Lamon JM,et al. Clin Res. 1977;25(3):471A.
  14. McColl KEL, Moore MR,Thompson GG, Goldberg A. Q J Med. 1981;50:161-174.
  15. Porphyria, Acute Intermittent. Cigna website. Available at http://www.cigna.com/healthinfo/nord318.html. Accessed July 15, 2010.
  16. Albers, JW, Fink, JK. Porphyric Neuropathy. Muscle Nerve. 2004 Oct;30(4):410-22.
  17. Anderson, KE. Approaches to Treatments and Prevention of Human Porphyrias. In: Kadish, KM, Smith, KM, Guilard, R, eds. The Porphyrin Handbook. Volume 14/ Medical Aspects of Porphyrins. San Diego, CA: Academic Press; 2003; 247-275.
  18. Palmer K. Abdominal Pain Due to Acute Intermittent Porphyria. Dimensions of Critical Care Nursing 2006; 25(3): 103-109.
  19. Data on file: Lundbeck Deerfield, IL
AIP survey talk bubbles

Share your thoughts

and tell us your
ideas for spreading AIP awareness.
Survey results are displayed
immediately, so you can see other
people’s thoughts, too.

acute intermittent porphyria family discussion guide document

Talk to your family

Download a family discussion guide
and make sure your family has the
AIP information they need.

Acute intermittent porphyria infographic The Little Imitator

Raise awareness of AIP

Our new infographic, "The Little Imitator", is a great tool for helping other people understand AIP. Get your copy and start sharing!

Share Your Story

Help others with AIP learn about life with the disorder. Tell the community about your experiences.

acute intermittent porphyria and panhematin toolkit for healthcare professionals

Request a toolkit

The toolkit for healthcare
professionals
provides essential
information on AIP and the use of
Panhematin.

Contribute a Case Study

Your clinical experiences are valuable to other healthcare professionals. Share your knowledge in an AIP case study.

Diagnosing AIP: An expert opinion

Dr. Karl Anderson discusses the pathophysiology of the disorder and explains a key diagnostic test.
Watch the video

Panhematin (hemin for injection) administration video

Watch the
Panhematin Dosing &
Administration video

View a tutorial that explains how to prepare and administer Panhematin.