Helping to Manage AIP
If you are living with Acute Intermittent Porphyria (AIP), there are two key ways you can help manage your condition — recognizing triggers of an attack, and managing attacks when they do occur.
Each person experiences AIP differently and each may have different triggers for attacks. However, these are some factors often identified with acute attacks.3
- Various drugs (Talk to your doctor about which drugs may be problematic)
- Substance abuse
- Emotional and physical stress
- Cyclic factors (specifically premenstrual status)
Some of these factors are best managed in collaboration with your doctor, such as the medications you take for an illness, as well as the medications you use to manage the signs and symptoms of your AIP.
Learn more about how you can take charge of your condition to manage the factors you can control, such as diet, smoking, stress, and other medications.
Because attacks can be serious, even life-threatening, hospitalization may be required.3 Depending on the types of signs and symptoms you are experiencing, you may receive different types of treatment.
Options for treatment include:
- After a trial with glucose, Panhematin (hemin for injection) may be recommended for administration early in attacks and is usually given over a period of four days in a hospital setting. Panhematin therapy for the acute porphyrias is not curative. After discontinuation of Panhematin treatment, symptoms generally return although in some cases remission is prolonged.9
- Symptom management may include medications for pain, nausea and vomiting. Other medications may be needed to address other signs and symptoms, such as rapid heart rate, seizures, muscle weakness, and mental signs and symptoms.1,3
Your doctor will determine the most appropriate treatment while you are having an attack.